cf/Aware @CFAware
All about Cystic Fibrosis. Always refer to your team for specialist advice. Oh and we don't always agree with RTs. cfaware.co.uk Joined February 2012-
Tweets79K
-
Followers12K
-
Following9K
-
Likes11K
cf/Aware retweeted
Excited to offer participation in GRAMPUS-CF to patients with cystic fibrosis worldwide. Just click on the link to join the study! grampus-cf.org @cftrust @CF_Foundation @alloonsl @CFAware
0
2
4
341
0
View Details
cf/Aware retweeted
$VRTX on pace to lose $15B in market value today.
$VRTX - That was a bad quarter. Every product missed. Lower end of guidance raised -- who cares? Lots of handwaving around Journavx access but insignificant revenue. Casgevy is a money loser. The stock is near an all-time high and trades at 26x, Vertex needs to do better. The
cf/Aware retweeted
Today the European Medicines Agency’s (EMA) Committee for Medicinal Products for Human Use (CHMP) adopted a positive opinion for our fifth cystic fibrosis (CF) medicine. This is an important step towards our goal of treating all people living with CF.
cf/Aware retweeted
Today the European Medicines Agency’s (EMA) Committee for Medicinal Products for Human Use (CHMP) adopted a positive opinion for the label expansion of our fourth cystic fibrosis (CF) medicine to include an expanded population with certain mutations. This marks an important step towards our goal of treating all people with CF.
Mycobacterium Abscessus Infections and Cystic Fibrosis | Nature Research Intelligence nature.com/research-intel…
Cystic Fibrosis and Fungal Infections | Nature Research Intelligence nature.com/research-intel…
Cystic Fibrosis and Bone Health | Nature Research Intelligence nature.com/research-intel…
Do intravenous antibiotics improve pulmonary exacerbations (flare-ups) in people with cystic fibrosis? | Cochrane cochrane.org/CD009730/CENTR…
Body composition changes and clinical outcomes in pediatric cystic fibrosis during 24 months of lumacaftor ivacaftor therapy based on real-world data | Scientific Reports nature.com/articles/s4159…
cf/Aware retweeted
🚨 New in The Lancet Respiratory Medicine Phase 3 data on vanzacaftor–tezacaftor–deutivacaftor in #cysticfibrosis Read open access here: Patients aged 6–11 years tinyurl.com/446ju86t Patients aged 12 years and older tinyurl.com/5y453b56
cf/Aware retweeted
GRAMPUS-CF aims to understand gut symptoms in people with cystic fibrosis (CF) so that we can develop treatments. If you are a person with CF, you can help! Visit our website for participant information, online consent and to download the app. grampus-cf.org Thank you!
NICE Board says new method allowing greater weight to be given to severe diseases is working | NICE nice.org.uk/news/articles/…
Boy, 3, has combination of CFTR mutations, no CF symptoms: Report cysticfibrosisnewstoday.com/news/boy-3-com…
NICE approves three cystic fibrosis drugs for NHS use - The Pharmaceutical Journal pharmaceutical-journal.com/article/news/n…
cf/Aware retweeted
UK #CysticFibrosis community! Tell us about your thoughts on inhaled meds & interacting with your care providers post-Kaftrio in this anonymous 5-10 min research survey. Your voice matters! Please share! [shef.qualtrics.com/jfe/form/SV_6V…] #CF
cf/Aware retweeted
Trikafta revolutionized treatment for Cystic Fibrosis, reaching >90% of patients variants. But what about the remaining untreatable 10%? We studied several poorly responsive, FDA-unapproved variants and paved a path forward for drug development. biorxiv.org/content/10.110… 1/7
CF patients eat high-fat diet despite guidelines: Review cysticfibrosisnewstoday.com/news/cf-patien…
Cystic Fibrosis Trust @cftrust
26K Followers 4K Following We're dedicated to uniting for a #lifeunlimited for those living with #cysticfibrosis. Our social & Helpline teams monitor our accounts between 9-5 weekdays.
Cystic Fibrosis Found... @CF_Foundation
30K Followers 2K Following Recognized globally, the CF Foundation has led the way in the fight against cystic fibrosis, fueling extraordinary medical and scientific progress.
Gunnar Esiason @G17Esiason
21K Followers 560 Following Saved by science 🧬 Patient advocate 🫁 Dad 👶🏻🐶 Biotech / Healthtech | Venture / Startups | Hockey coach 🔬🏒 @BostonCollege @TuckSchool 🦅🌲
Strawfie Challenge @strawfie
4K Followers 6K Following A Selfie Campaign - Take a photo breathing through a straw, #strawfiechallenge Download campaign song: Breathe With Me by Betsa in aid of the CF Trust (UK)
Jillian McNulty @jilli09
4K Followers 3K Following Award Winning Cystic Fibrosis Campaigner. 2017 Longford Person Of The Year, Kidney Transplant Recipient 💚Spearheaded Ireland’s #Orkambi Campaign #mymiracle
Andrew @Andyassert
577 Followers 176 Following Married. Father. Double Lung Transplant. Cystic Fibrosis. 34. Music lover, you'll usually find me wearing headphones! 🤟😂🤟 🐜 #9372 & all things ViewAskew
CF Adventurers @CfAdventurers
2K Followers 3K Following CF Adventurers, https://t.co/0WCB7sg5Xf, is a place for people with cystic fibrosis to meet online, support each other, chat, and have fun.
CF News Today @CFNewsToday
5K Followers 2K Following Your source for cystic fibrosis news, support, & real stories from the community. Let’s raise CF awareness together!🎗️
Normal Life @NormalLife7
2K Followers 319 Following Content creator with Cystic Fibrosis and a bit of moaning on the side.
Ben Oxlade-Parker @BenOxlade1
20K Followers 4K Following Husband to a wonderful wife. Father to two boys; a #CFWarrior son (R) and an empathetic son, who's also an amazing big brother (H)! #SWFC
Kimberly Toogood @KToogie
3K Followers 5K Following Artist; @sketchybreather Cystic Fibrosis, Double lung transplant recipient, in rejection. No press enquiries! Eric & Ava ❤️ Shielding & miss hugs!
Nick Talbot @CF_vs_Everest
2K Followers 912 Following CEO & Motivational Speaker with Cystic Fibrosis (CF) achieved world first climbing the 7 Summits and reaching the South Pole for CF.
CF inpatient unit -Pe... @PearceWardMFT
733 Followers 474 Following Manchester's Adult Cystic Fibrosis Inpatient unit - now back home on Pearce ward from Spire Manchester as of April 21 ✨🏠
Alan Smyth @AlanRSmyth
620 Followers 165 Following Paediatrician, Clinical Researcher, Cyclist and Pilot. The views expressed are my own
Cystic Fibrosis Resea... @CFRI_CureCF
2K Followers 2K Following CFRI funds research, provides educational resources and community support, and spreads #cysticfibrosis awareness. #curecf. For more info, visit https://t.co/H2fMOw9N6c
UHB CF Dietitians @CF_dietitians
719 Followers 249 Following Providing nutritional advice for cystic fibrosis patients! Our tweets do not replace the specific dietary advice your own dietitian may provide.
Heather @C_F_Doc
463 Followers 241 Following Consultant at Manchester Adult Cystic Fibrosis Centre, interested in all things CF especially home care, adherence and unusual bugs
Beam for Cystic Fibro... @Beam_CF
1K Followers 620 Following Movement to feel good 🙂 Online sessions for both children and adults, led by people with or working in cystic fibrosis. Join our global community #beamfeelgood
Annabelle💘 @fatallyfibrosed
425 Followers 205 Following ✨My lungs don’t work very well and I have a dead pancreas floating inside my body✨ she/her
Tanya Koorts @TanyaKoorts
304 Followers 411 Following 🧡I am a CF warrior mom fighting for my son to breathe just one more day🧡 🙏All glory to God🙏
I @replyguy1990
45 Followers 985 Following
adi oppenheimer @AdiOppenhe79149
0 Followers 29 Following
Life At Pancake Rocks @LifePancakeRock
0 Followers 22 Following Double Lung Transplant Survivor | CF Warrior | Faith-driven Pharmacist, Wife & Mama | Helping others breathe easier and find hope in the daily struggles
SwingChartist🇺🇸 @Gawka247
48 Followers 2K Following 15-30% Monthly | 2 High-Conviction Stocks.Short-Term Gains: 15-20% in Days/Weeks.DM "JOIN" for WhatsApp Alerts. Live Trade Signals • Market Analysis
Kieran @_kieconnorjs
2 Followers 31 Following London Marathon 2025 Finisher!! Manchester & London Marathon 2026 🔜 #TeamCF / @CFTrust
MyCam Studio Network @MycamStudio
53 Followers 100 Following MyCam Studio Network, founded in 1995 as a small amateur hobby, has evolved into a professional filmmaking operation known for its high-quality productions.
Corey Koehn @coreybkoehn
4 Followers 110 Following
Abdul Ahad @AbdulAhad3022
9 Followers 1K Following
Exultemus Et Laetemur @Tempus_fugit666
46 Followers 882 Following
Andralex @Andralex2012
3 Followers 30 Following
pumpfake86 @TonyCasale86
3 Followers 221 Following
The Queen @queen13War
10 Followers 237 Following Happy go lucky enjoying my life and looking at the positives
Sarah Chap @sarah_chap2312
0 Followers 23 Following
Parker @geoffjmparker
110 Followers 220 Following Medical Image Computing | Founder and CEO of @Bioxydyn | Chair of @QueenAnalytics | work at @UCL
Kielaw @Kielaw463
44 Followers 1K Following
jim @averagesbeater
26 Followers 321 Following Drunk tweeter, Chronic Overthinker and averages beater
Supporting Healthcare... @SupportingHH_UK
1K Followers 2K Following 💙UK Registered Charity: 1205685 💙Long COVID doesn’t stop the care - neither do we. 💙Join our 2025 Campaign: #SafeAir4All
Vishnu @vishh_is_here
43 Followers 682 Following 💥 😁made in India🕉 🏞 loves to travel 🏝Animal lover🐶 🎧🎶Music addict.
Kaana Foundation for ... @KKafop
427 Followers 4K Following We focus on three (03) sustainable development goals; Goal 3 (good health and wellbeing), Goal 6 (Clean Water and Sanitation) and Goal 13 Climate action
ILoveBling @Notafanofslime
21 Followers 62 Following
scott wilson @scottwi09427795
2 Followers 48 Following
Katelin Renner @KatelinRen34861
66 Followers 1K Following
Mer @Telltoyfu
0 Followers 930 Following
Matt @mtthwkng
31 Followers 571 Following
Sharon Redmond @SharonRedm13956
8 Followers 125 Following
🏴☠️Cody🏴... @fallen8132
265 Followers 994 Following
CF treatments @CFtreatments
0 Followers 8 Following CF treatment at a discount, reach us for enquiry.
Alex Cheng @Syde_Walker
63 Followers 965 Following Clinical Development, Regulatory Affairs, Biotech Veteran. Open to consultation-based work and entrepreneurial opportunities.
babak ghalibaf @BGhalibaf
0 Followers 28 Following
Murithi Nabea @MurithiNab80870
115 Followers 2K Following
Sachtiez @SachtiezV4n
9 Followers 494 Following
THCF @THCF_ECFS
4 Followers 79 Following
Auralee Rose @auralee_rose
9 Followers 276 Following
Nejla @Nejlaydin58
30 Followers 92 Following
Dr. Nanu Lunavath @LunavathNanu
66 Followers 1K Following
the wall @cryptoconnect04
2K Followers 497 Following
Thoosesth @ThoosesthRcWD9
7 Followers 175 Following
sara-lou @tink150511
24 Followers 238 Following sc.... tink1105 🧚🏻♀️ insta....saralou0511📸 tumblr...tink150511😈
Edoardo Albisetti @EdoAlbis
184 Followers 278 Following Associate Professor @fisipolimi / Nanophysics in Condensed Matter @PhyndLab
Mia @Mia_hl6
0 Followers 7 Following
Maria Villarreal @miElenita
6 Followers 21 Following
Health Psychology Job... @HealthPsychJobs
627 Followers 896 Following Sharing Health Psychology & Behavioural Science jobs 💫 Please share roles you find for all stages of health psych 🙏 😎 Run by @JessicaProctor_ & @Osaoreefe
د . أميرة ال�... @Dsalmixx
16 Followers 100 Following ⚕️ طبيب متخصص في عالم الجمال والتجميل ملتزم بتحقيق الجمال الطبيعي والصحة البشرية 💄💆♀️ تابعوني للنصائح والمعلومات حول العناية بالبشرة والشعر والمكياج 🌟
Katie Dubbs @katie_dubbs
39 Followers 329 Following
Cystic Fibrosis Trust @cftrust
26K Followers 4K Following We're dedicated to uniting for a #lifeunlimited for those living with #cysticfibrosis. Our social & Helpline teams monitor our accounts between 9-5 weekdays.
Cystic Fibrosis Found... @CF_Foundation
30K Followers 2K Following Recognized globally, the CF Foundation has led the way in the fight against cystic fibrosis, fueling extraordinary medical and scientific progress.
Gunnar Esiason @G17Esiason
21K Followers 560 Following Saved by science 🧬 Patient advocate 🫁 Dad 👶🏻🐶 Biotech / Healthtech | Venture / Startups | Hockey coach 🔬🏒 @BostonCollege @TuckSchool 🦅🌲
Strawfie Challenge @strawfie
4K Followers 6K Following A Selfie Campaign - Take a photo breathing through a straw, #strawfiechallenge Download campaign song: Breathe With Me by Betsa in aid of the CF Trust (UK)
Jillian McNulty @jilli09
4K Followers 3K Following Award Winning Cystic Fibrosis Campaigner. 2017 Longford Person Of The Year, Kidney Transplant Recipient 💚Spearheaded Ireland’s #Orkambi Campaign #mymiracle
Andrew @Andyassert
577 Followers 176 Following Married. Father. Double Lung Transplant. Cystic Fibrosis. 34. Music lover, you'll usually find me wearing headphones! 🤟😂🤟 🐜 #9372 & all things ViewAskew
CF Adventurers @CfAdventurers
2K Followers 3K Following CF Adventurers, https://t.co/0WCB7sg5Xf, is a place for people with cystic fibrosis to meet online, support each other, chat, and have fun.
CF News Today @CFNewsToday
5K Followers 2K Following Your source for cystic fibrosis news, support, & real stories from the community. Let’s raise CF awareness together!🎗️
Holly Rosanna 🌻 @hollyrosanna
3K Followers 390 Following Final year OT Student 💚 lived experience: Cystic Fibrosis, ICU, Double lung transplant 02/2015 🫁
Normal Life @NormalLife7
2K Followers 319 Following Content creator with Cystic Fibrosis and a bit of moaning on the side.
Ben Oxlade-Parker @BenOxlade1
20K Followers 4K Following Husband to a wonderful wife. Father to two boys; a #CFWarrior son (R) and an empathetic son, who's also an amazing big brother (H)! #SWFC
Kimberly Toogood @KToogie
3K Followers 5K Following Artist; @sketchybreather Cystic Fibrosis, Double lung transplant recipient, in rejection. No press enquiries! Eric & Ava ❤️ Shielding & miss hugs!
Nick Talbot @CF_vs_Everest
2K Followers 912 Following CEO & Motivational Speaker with Cystic Fibrosis (CF) achieved world first climbing the 7 Summits and reaching the South Pole for CF.
CF inpatient unit -Pe... @PearceWardMFT
733 Followers 474 Following Manchester's Adult Cystic Fibrosis Inpatient unit - now back home on Pearce ward from Spire Manchester as of April 21 ✨🏠
Alan Smyth @AlanRSmyth
620 Followers 165 Following Paediatrician, Clinical Researcher, Cyclist and Pilot. The views expressed are my own
Cystic Fibrosis Resea... @CFRI_CureCF
2K Followers 2K Following CFRI funds research, provides educational resources and community support, and spreads #cysticfibrosis awareness. #curecf. For more info, visit https://t.co/H2fMOw9N6c
UHB CF Dietitians @CF_dietitians
719 Followers 249 Following Providing nutritional advice for cystic fibrosis patients! Our tweets do not replace the specific dietary advice your own dietitian may provide.
Heather @C_F_Doc
463 Followers 241 Following Consultant at Manchester Adult Cystic Fibrosis Centre, interested in all things CF especially home care, adherence and unusual bugs
Beam for Cystic Fibro... @Beam_CF
1K Followers 620 Following Movement to feel good 🙂 Online sessions for both children and adults, led by people with or working in cystic fibrosis. Join our global community #beamfeelgood
Annabelle💘 @fatallyfibrosed
425 Followers 205 Following ✨My lungs don’t work very well and I have a dead pancreas floating inside my body✨ she/her
Smoke me a kipper @trebletime23
228 Followers 970 Following I don't want to start any blasphemous rumours, but I think that god's got a sick sense of humour and when I die I expect to find him laughing.....
Tim Devine @TimDevine3
97 Followers 345 Following
3CF @3CF_ie
261 Followers 525 Following We are the Cork Centre for Cystic Fibrosis (3CF) at the Cork University Hospital. Updating our patients, the public, and researchers on our work
Rachel Williams @Rachel250985
11 Followers 250 Following
English Bulldog Lover... @eng_bulldog11
274 Followers 2K Following welcome to @eng_bulldog11 we share daily @eng_bulldog11 contents Follow us if you really love @eng_bulldog11
Kimberly Dillard @KimberlyD94766
6 Followers 86 Following
Sanet Bharara @sanet_bharara
1 Followers 40 Following
Nate Fitch, PhD @docfitch480
4K Followers 4K Following Writer of Horror Fiction // Biomedical Scientist // 🖋️@getfreewrite author advocate & @Inkitt published author
Tinkler @Tinkler51030821
4 Followers 28 Following
_laurenclayton_ @laurenclayton__
67 Followers 136 Following Respiratory physiologist 🫁 | PhD researcher @UoPSportScience - Exercise physiology in cystic fibrosis during the modulator era 👩🏼⚕️🫁🚴🏼♀️ @CFwarriors
Selvarani Subbarayan @selvs11
210 Followers 2K Following
Kelly McPartland Borz... @KMMcPartland
93 Followers 585 Following Non-profit professional, diabetes and cystic fibrosis advocate, amateur runner, Bowie fanatic.
Gloria Watkins @GloriaWat0406
64 Followers 253 Following
Rachel a Hampton @Rachelanne6981
21 Followers 61 Following 41. Leaving Cystic Fibrosis and all the good stuff that comes with it. Meeting people to talk to about adults yet and not having a support group
Sally Evans @Sally_Evans19
60 Followers 97 Following Cystic Fibrosis Nurse Specialist at Birmingham Women’s and Children’s Hospital. All views are my own.
Lucy James @lucyjames66
36 Followers 119 Following
HARSHCHHIBBA @harshchhibba
65 Followers 310 Following
Paige Burvill @BurvillPaige
192 Followers 503 Following Registered Dietitian working in Paediatrics. South Wales 🏴. she/her 🏳️🌈. Views my own.
Mehdi Amiripanah @MehdiAmiripanah
113 Followers 134 Following کاملا شخصی و در ضمینه های همه مردم دنیا برای آرامش و راحتی فکر
JODIE MORGAN @CFCHAMP12
24 Followers 106 Following You never know how strong you are , until being strong is the only choice you have 💫
Alys Harrop @AlysHealthPsych
36 Followers 140 Following MSc in Health Psychology, currently a Senior Research Assistant at Cardiff Met school of sport and health sciences! 🩺🧠❤️🩹
Brittany Magner @Brittan99179933
7 Followers 42 Following
Lightheaded @Lightheaded_ZA
18 Followers 147 Following We believe in creating meaningful experiences, either through the artists and businesses we represent or the content we create. Fortune favours the Bold.
freya @freyapudney
5 Followers 55 Following
PhagesKIPRE @PhagesIPR
1K Followers 3K Following Phages @DrAtunga's Lab Phages for AMR, biocontrol, decon & display Email: [email protected].
mbh @meadhbh_bh
951 Followers 784 Following
Stephen Partlett @StephenPartlet5
1 Followers 17 Following
FiguringItOut223 @MoreTays
5 Followers 14 Following I Creat Writing Journals aslo Ebooks Plannerd I want to bring more awareness to Cystic Fibrosis https://t.co/2Kg9TZ9DT8…
HALUK @halukipek
83 Followers 411 Following
😘 @batshit4eva
41 Followers 145 Following 🗣️I am transphobic !! I have a fear of men in women’s safe places.
Zoe Phillips @zoephilps
25 Followers 267 Following
Katherine Ochoa @Katisuka86
5 Followers 79 Following
Mark Tremblay @MarkTre88197226
22 Followers 127 Following 50 year old sober biker with Cystic Fibrosis liv’in out loud
Katie @Katiecros11
4 Followers 94 Following
Maude Perrine -Writer... @MaudePerrine
2K Followers 3K Following Author of 'Love you' & audiobook narrator 📚🎧 Cystic fibrosis & diabetes warrior 🫁💜 Spoonie🥄Married 💍 #cysticfibrosisawareness
CF Vests 4 Life @cfvests4life
292 Followers 1K Following We are a Nonprofit Organization that provides CF equipment to add more mornings to the lives of CF Warriors the world over which was established June 2020.
Susanna McColley MD (... @SusannaMcColley
2K Followers 2K Following Professor of Pediatrics @NUFeinbergMed @LurieChildrens, @NUCATSInstitute, Editor-in-Chief, Pediatric Pulmonology. CF, Child Health, Health Equity. Tweets=mine.
Sanjana Sinha @SanjanaSinha121
20 Followers 66 Following Growth begins when both the input and environment are optimum...🧠#Biotechnologist, working in the fascinating world of #Neuroscience
Katjeb @KathyBuytaert
40 Followers 381 Following Mama en oma in een huis vol liefde #team #muco #cfwarrior baby Lyo ❤️
OlaKa @Aleksan12948879
42 Followers 636 Following
Trends for United States
You might like
CF News Today
@CFNewsToday
5K Followers
Cystic Fibrosis Trust
@cftrust
26K Followers
Cystic Fibrosis Resea...
@CFRI_CureCF
2K Followers
CF Adventurers
@CfAdventurers
2K Followers
Jillian McNulty
@jilli09
4K Followers
CF Vests Worldwide
@cfvww1
6K Followers
Jerry Cahill
@jcahillYCF
4K Followers
Fight4Orkambi
@fight4orkambi
989 Followers
Angie Kinney
@angiekinney311
1K Followers
Strawfie Challenge
@strawfie
4K Followers